Today marks six years of living with Retinitis Pigmentosa. Six years since my life was picked up and put on a different track. Despite my gratitude for still being able to cling on to most of my independence, the fear seeping in as my vision changes is palpable. When I was told I had RP the first time, when I …
Spot the Stop
September marked the start of my current wave of counselling. After being on the waiting list for over a year, my CBT (Cognitive Behavioral Therapy) for PTSD (Post Traumatic Stress Disorder) has finally started. If you have been reading my blog for a while, you’ll know this isn’t my first rodeo when it comes to counselling and done right, it …
Testing the boundaries
One of the burdens of an invisible illness is that it only affects you. The weight of the now and future of it all is heavy and all consuming but adjacent to you, sitting right next to you, is absolutely fine and dandy. For now, I can hide my condition and I choose to keep my diagnosis a secret …
No Cakewalk
At the school gates recently, a few of my mum friends and I gathered to collect our children. One of the many things I adore about women, is our ability to cut through the BS and say things as they really are. Within moments our conversation quickly delved beneath the pleasantries and straight to how we were actually feeling. All …
Early Days and Old Bones
Recovering from an injury in your 40s is not fun. 9 weeks ago I suffered a foot fracture and I honestly thought that I would just pop back to normal after a short while – I was wrong.. I used to endure the most unimaginable surgeries as a child and be back at school the following week with my stitches …
Graduation Break
A few things make me bounce around with joy. Aside from family and friends, I can think of two things that make my heart smile: The first air play of a Christmas song on the radio, usually in November. The hop skip and a jump through the school gates in July signalling the start of the summer holidays! The latter …
Virtual Coffee
Last year I took part in an amazing Wellbeing initiative set up by Retina UK. During this time I spent several Friday mornings chatting candidly to an awesome woman who is over 200 miles away from me. We became good friends during those hours of honesty and vulnerability and I was thrilled when her name appeared in my WhatsApp messages …
Say Something
The human body is fascinating in so many ways and just bloody crazy in others. After getting settled in our new home and the successful completion of the dreaded April 19th, I was convinced I would feel super chilled and all round awesome again. I didn’t. High Blood pressure decided to pay me a visit and on the advice of …
April
I was thankful for the Easter Break last month. I love having my little mini me home for the holidays. We packed loads into the two weeks. Days out at the beach, exploring woodlands, adventure playgrounds, playdates, Easter Egg hunts and my daughters first ever train ride. I gave it my all as in the back of my mind, …
If only…
March 12th always makes me feel weird. My phone very kindly reminded me of the significance of today, by sharing with me my very own selfie that I took on this day in 2019. I gazed at that picture this morning, looking at the woman, who at that point had no clue what was about to come crashing into her …